Archive | February 2013

Brian’s blog – Sunday 24th February

Hello again. I am getting used to using my new laptop, but there is so much to learn. Thankfully Dr.Maggie is going to continue to teach me how to use it. The thing is, I seem to be getting along fine and the gremlins take over. Before we set out on this process, Dr. Maggie taught me to be patient with any new technology she was teaching me and I think I have managed to do this. I am very rarely frustrated with mistakes I may make. I try to be logical in everything I now do, not just with new learning but also with things which may crop up daily as a result of my Dementia.

I think I wrote in a previous blog that I have been accepted onto The Committee of the Scottish Dementia Working Group. I attended my fourth meeting of the committee last week and I found it very humbling being a part of this group of men and women who also have Dementia. As a group we are assisted by a few Professionals who are co-opted on to the committee. Their knowledge and experience are very important during discussions and debates. Every single person I have met in my new role has made me feel so welcome and valued. I have been encouraged to give my opinion and to raise anything I may see as relevant. At the meeting there was no doom or gloom and I can recall cheerfulness and laughter during the meeting. Most of my fellow members have had a diagnosis of Dementia much longer than me. This fact has made me so much more confident in myself.

I very strongly feel that any fear or despondency I had previously has been put aside and replaced by a new me. There are so many good things happening in my life, I can face each day with a completely different outlook. My sleeping pattern has greatly improved and when I saw my GP she actually recommended that maybe it was time to start a very long process of reducing some of the medication I have been taking for such a long period.

I am starting to prepare a presentation for an event coming up. I will be talking of my experiences with Alzheimer Scotland. This will be the first time I will be using Power Point to assist me so I am starting to put it all together quite early.The great thing is, some of the SDWG Committee will also be making a Presentation. This will make me so much more confident, knowing I will have friends around me and supporting me.

I am going to keep this blog short but I will be back next week after yet another meeting. I will explain next time after I have been to the meeting.

Thank you for taking the time to read this blog.

Brian’s video blog

Brian has made a video which can be seen on the COBALT facebook page – see link at the bottom of this page

Brian’s blog – Monday 4th February 2013

Hello again. It has been some time since I posted a blog. Despite that I am still very much interested in COBALT and Dr. Maggie is a regular visitor.

My Vascular Dementia appears to be on hold at the moment but my Dementia with Lewy Bodies has been erratic to say the least. I have spoken to my GP and to Dr.Maggie about this.

I am currently ticking all the boxes for my Dementia with Lewy Bodies. It has been explained to me the unpredictable nature of this Dementia and this is the bit I have problems fully understanding.

My wife S is probably the one who is most aware of this as she is with me 24/ 7. S. tells me of how erratic my condition is. I have been having falls, hallucinating badly, my mobility is affected during these sometimes very short incidents. Sometimes they can last for a full day and night and on some occasions for less than one hour. My memory of these occurrences is fragmented. Thankfully I have more good days than bad.

Two weeks ago I was accompanied by my wife S and Dr Maggie to Bath to take part in a Conference/Workshop over a very busy eight hours. I shared a Presentation with Dr.Maggie and thankfully it went really well. As I have said before, I have become very interested in using Power Point as an aid for presentations. With Dr. Maggie sitting right beside me my confidence and belief in my ability was high. During my delivery I talked about the changes in my life as a result of re-learning old skills and the fact I am proof positive that new skills can be learned, especially with new technology. During the Conference I was approached with invitations to speak at other Conferences. Dr.Maggie and my wife S are very protective of me in these situations. We decided as there are other things happening in my life we should be careful to go with quality rather than quantity.

I am pleased and feel very honoured to tell you that I have been invited to be a judge at the Scottish Care Accolades in the coming months. Really, I only have to think back six months and recall that I could barely use a Television Remote Control. The changes in me are incredible.

I have also been invited by Dr. Maggie to the Dissemination of the COBALT PROJECT.

These days I am been made to feel so included that my self-worth has increased greatly.

I will be keeping you informed of how things are going for me and I would like to thank you for taking the time to read this Blog.

Brian’s blog – Tuesday 2nd January 2013

Hello. It seems such a long time since I last posted a blog. Probably most of us are very busy at this time of the year.

I am delighted to tell you that there has been no further progress with my Dementia. Every thing is fine and I am physically well.

I have been working on a Presentation which I have to deliver in three weeks time. This will be my biggest piece of work in terms of content and length since I was diagnosed with Dementia.

Dr. Maggie has been teaching me how to use Power Point and I will be using it for the presentation. Together we have covered a wide range of possibilities to use and we have agreed on the items which will be appropriate on the day. I particularly like the idea of using bullet points just to keep me on track during the delivery.

My i.Phone has been a great advantage to me as I have a good deal of information in my personal journal which I can use during my presentation.

At Christmas I was delighted when my wife S gave me a Kindle. I could not wait to start using it but mindful of what Dr. Maggie has taught me, I have taken time to get to know it and read the instructions. Add to that my five years old Grandson E always looking over my shoulder and keeping me right.

I have spent many hours reading through the list of books available for purchase, and it certainly beats going into town to visit the library. Before my diagnosis I was a bit of a bookworm and suddenly I was missing something that I had really enjoyed.

Things in my everyday living were lost and I could not find a way through it. Then along came Dr. Maggie who re-introduced me to modern technology, and taught me other technology which I had not even heard of.

I understand that I will not be the quickest of students but when I learn something new I am still able to retain it in the memory I thought I had lost.

Thank you for following or just taking time to read this blog.

Brian